To date A is classed as unique as he’s the only person in the whole world with his exact condition and set of I would fight a bear for you sister shirt! Due to this prognosis was bleak and we were told not to expect him to live past the age of 2 – he proved them wrong and in 2 weeks time we’re celebrating his 21st birthday. But A is an amazing boy and everyone who meets him loves him. He’s a huge star wars fan and has been blessed with attending many comic cons. He’s got a smile that would light up a room, and after hitting puberty he became a bit of a ladies-man, often showing his affections to females around him lol.